Making Myself Promises

I keep making myself promises to do better on this blog. I want to update it more so I can remember all the things we've done and just how far Kendal has come. Sometimes I feel like nobody even cares to read it because it's boring everyday stuff, but I know it is good for me to stop and write these posts. It helps get out all my frustrations and reminds me just how good life is when we have one of our good days.

One of our good days is illustrated in the pictures below. I am terrified of horses! Don't know why, just know that they are much bigger than me and that they can hurt me. We visited my aunt and uncle who have horses and something told me I really should not pass down my fears to Kendal, who actually might enjoy them. Alot of children with Angelman Syndrome do hippotherapy. Kendal has never really needed this additional therapy so I never pursued it, but she did so good! Look at my little brave baby! My sister Katie and my aunt Kristy held Kendal in place, while my uncle Joe steered Bo(the horse). I think the pictures tell the rest of the story.

I look at her and am so amazed. I know all parents must feel that way about their child - but maybe because of her disability, I don't take it for granted as much as most parents. I truly can't fathom why God blessed me this much. I am just humbled to have this life, thank you God for your grace!

Tomorrow I take Kendal to the Neurologist and then to the Developmental Specialist. Both of them are follow up appointments so I am not anticipated anything new. I am however really looking forward to her appointment on Friday to see another Sleep Specialist. Her sleep has been really bad again, and with James working nights, I am on my own with her. This particular doctor is supposed to be more familiar with her disorder and why sleep is so affected by it. If I have another doctor tell me she needs a routine, I'll think I'll kill someone! The girl has more routine than anyone - Her nighttime schedule is exactly the same everyday (+/- 5 minutes). I can't possible fit anymore routine into our schedule. It's not the routine that throws her off - it's her brain! I will definitely do a post on this appointment.

Got to run for now, but will really try to do another post by the end of the week!