A Little Bit of This, A Little Bit of That

The above picture shows just how far Kendal has come with letting things touch her face/head. I got Kendal some sunglasses to try to keep encouraging her to try letting things touch her face. As Ashley, our speech therapist, will let you know, Kendal is not too keen on anyone touching her face or head! Two solid years of Occupation Therapy once a week, and she is just now beginning to experiment with things. She will not allow us to put the glasses on her but she will hold them up to her eyes for a second at a time. Hopefully in a another year or two she will tolerate them being on her. Every time I see these beautiful little toddlers running around in cute little sunglasses, I feel like telling the mothers, "Hey, don't you realize how awesome that is? Not everyone can do that!"

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Not much has changed since taking Kendal off of the Clonodine except she is SLEEPING now at night!!!!! That is a major accomplishment and we are all so much happier because of it. We have been pounding away this month with all our weekly therapy sessions and Kendal has been cooperating fairly well.

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I can't wait until the weather warms up. Saturday afternoon I got out with Kendal for a walk and she had a ball. If only we could all be that happy just going out for a walk. She saw a bird, she SQUEALED! She saw a car go by, she SQUEALED! She saw someone else walking, she SQUEALED! -- I guess you get the point. Of all the lows that seem to come with this disability, I am so blessed to hear her beautiful laugh and know that she is happy.
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This weekend she got sick and I had to stay at home with her on Monday. I keep forgetting to let little things clue me into when something might not be right with her. For example, Kendal did not woof down her lunch of mac-n-cheese like she normally would. Very unusual for my girl. I should have known something was up. It's just so hard because I have never seen her rub her tummy or groan or anything like that to make me think that she might have a tummy ache. How do I know??? Is she hurting physically but just doesn't know how to express it??? I guess I will be on a learning curve over the next 20 years.
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Bath-time has been a new joy for Kendal. She doesn't play with any toys (Any other AS kids like this? She expects me to be her toy!) but she loves bubbles. The only problem now is that all she wants to do is eat bubbles. She lays belly down in the bathtub and eats all the bubbles she can. When she raises her head she always has a bubble beard and mustache. I'll try to get a picture. It's comical to say the least.
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Anyway, nothing too exciting - just wanted to update everyone on how things are going.
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Have a great week!