OK. This is it. Kerrie has entered the 21st century. Apparently, people all over the world have been blogging for quite sometime, but I am just now learning how to do this. Please bear with me as I get my feet wet in trying this puppy out. Shirley, I know you must be proud of me for getting this far.
I wanted to start this blog for two reasons. The first, being able to update family and friends of the goings-on in our lives. The second, to introduce Kendal and her diagnosis of Angelman Syndrome. I have found so many blogs from mothers of "angels", and yet Kendal is so unlike the majority I thought this might help other families like ours.
With the recent diagnosis of Angelman Syndrome (AS) this March, we are still learning so much. We are currently awaiting testing to determine what form of Angelman she has. We are certain, however, that she is not deletion +, the most severe form of AS. Kendal is now 2 and has been in therapy for over a year. Her progress has been absolutely amazing, and we know that we are just at the tip of the iceberg. In the next few days, I will be posting information concerning her therapies, how we have been managing the diagnosis, how this has affected our family, and how we have learned just how awesome God is.
Please check back often, as I will try to update frequently as time permits.
Thanks for visiting!!
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2 comments:
I am so very proud of you! I knew you could do it! I love you all and can't wait to check each and every new entry. Keep the pictures coming too.
Congrats girl! You are so gonna love keeping up with this...it is so cathartic and fun! Come visit me soon at www.thesinglemomchronicles.typepad.com
OR
http://friendsfromst.proboards61.com/
Looking forward to seeing you!
Love,
Rhonda
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